These are the seizures that are all day on the toughest days. No time to breathe these days really test how tough we are and how strong are bond is. Day 4/2000 seizures and the last few videos I’ve shared with just a 12 hour clip of what it’s like in our life and we share these is spread awareness. This is our family‘s journey as we battle DRAVET syndrome, a rare form of epilepsy that’s incurable and resistant to anti-seizure medication ##cooperstrong💜🙏##fyp##specialneeds##life##inspiration

Breaking down after 1000’s of seizures and no sleep. This is a parents perspective. I can barely keep up with coopers care the last two days so I fumbled my way through it the best way I knew how. #cooperstrong💜🙏 #fyp #specialneeds #dad #life Cooper is 13 and suffers from Dravet Syndrome a rare form of epilepsy.

He Built a Privacy Tool. Now He’s Going to Prison.